Montpellier University Hospital. “The disease, I hold it by the hand and I accept it.”

As part of this communication campaign, flyers and posters on the four ages will be distributed.
As part of this communication campaign, flyers and posters on the four ages will be distributed. The slogan “I am a very sick person! So what ? aims to challenge the feelings of the patients, but also to convey them concretely. (© Metropolitan / LP)

That Friday April 8ththe CHU, accompanied by the Montpellier City Hall, launched a communication campaign therapeutic patient educationa process that allows patients to accept and learn more about their illness, with the main goal of improving their daily lives. Unfortunately another device still very little known two such campaigns were carried out in Occitania in 2017 and 2018.

What is therapeutic patient education?

Therapeutic patient education is an opportunity for patients to better manage their chronic illnesses, which can be experienced as real physical and mental upheavals. Through this process, they can gain more autonomy.

So it is not up to the doctor to tell the patient what to do. Healthcare professionals and patients go hand in hand and learn from each other.

First, the patient gets to know the person they relate to and explains their illness to them as part of what is known as a joint information assessment. In particular, the patient addresses the things that he can no longer do because of his pathology and his goals for the future.

Health professionals then offer workshops on various topics, depending on the patient’s needs, such as: B. the benefits of treatments, how to deal with dietary differences, the help they can get and how to talk to those around them. Example: A diabetic can learn to recognize the early signs of a hyperglycemic crisis.

After several sessions of varying lengths, depending on the situation, the patient and doctor prepare an assessment. The device is completely free and patients do not need to be previously accompanied by the CHU of Montpellier to participate.

As a reminder, Montpellier University Hospital is one of the French centers offering the most programs (currently 68) in therapeutic patient education, with an average of 3,000 patients served each year.

On this occasion, Asia, patient partnertalks about his personal story and his experiences in therapeutic patient education.

The accident that changed his life

At the time, one nurse was attached to the Emergency Department of the Center Hospitalier de Perpignan, Assia victim of a serious accident. A car going the wrong way hits her head-on and her life changes. After more than 20 operations and year and a half in a rehabilitation center where she “had to relearn everything like a newborn,” doctors believe she needs to consider return to his homeland.

It’s a cold shower for Assia, who finds this change very brutal: “I found myself at home overnight. “.

Coming home is not a long calm river

Rather than marking the beginning of her remission, Assia experienced coming home as an extra blow to her neck. After her accident she is not pread completely autonomously and has to deal with other problems, such as B. recurrent urine leakage. ” A shame “ to his eyes.

Assia has both Fear and the need to confide. However, she has none not the possibility “I was ashamed and didn’t dare to confide, but I only saw a doctor for consultations that lasted less than ten minutes. It is difficult to speak under these conditions. “.

“I was ashamed and didn’t dare to confide, but I only saw a doctor for consultations that lasted barely ten minutes. It’s difficult to speak in these conditions.”.

AsiaPartner patient as part of a therapeutic patient education

Soon after, she began suffering from one Paralysis of the left legwhich turns out to be symptomatic of a multiple sclerosis. This illness then plunges Assia into a deep depression.

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The revelation

During a consultation with her neurologist in Montpellier, Assia discovered therapeutic patient education. The latter actually offers him to participate in “a system of peers”.

Between stress management workshops, meditation and expression through photography, Assia sticks to the device very quickly. She also learns the proper way to take her treatments and their benefits.

Therapeutic patient information is also based on theIntervention from patient partners and experts who come to share their experiences with the sick. One click for Assia: “I totally recognized myself in it. “.

Today she wears a completely different view of his illness : “The disease, I hold it by the hand and I accept it. “. Even if her pathologies are a part of her, the young woman accepts them without basing her entire identity on them: “Pathology is there, and I want to be more than a disease, I am more than a disease. “.

“Pathology is there and I want to be more than a disease, I am more than a disease.”

AsiaPartner patient as part of a therapeutic patient education

Today it’s Assia’s turn patient partner and wants to be a coach. For this she enrolled at the Medical Faculty of Montpellier and follows a University degree specializing in patient-caregiver partnership.

A great awareness

Thanks to the patient’s therapeutic enlightenment process, Assia also realized that her illness wasn’t just affecting her real influence on his loved ones : “The ones who were really dear in the story were my relatives. I realized that they were going through all the forms of grief that I was going through. “.

“Those who took true love in the story were my loved ones. I realized they were suffering from all the forms of grief that I have been through.”

AsiaPartner patient as part of a therapeutic patient education

Indeed, nurses accompanying patients often have done so hard to feel legitimate and tend to live in the patient’s shadow. For this reason, therapeutic patient education gives patients the opportunity to be heard and tries to provide the best answers to their difficulties.

For example in the case of a Child diagnosed with ADHD (Attention Deficit Hyperactivity Disorder), parents can attend workshops to make an informed decision about whether or not to seek drug treatment for the latter.

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